NAMI - You are Not Alone — As a 42 year old woman who has had epilepsy since...

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See, that’s what the app is perfect for.

Sounds perfect Wahhhh, I don’t wanna

As a 42 year old woman who has had epilepsy since the age of 16 that seems like it will never be what doctors consider controlled, I have come to accept many things about my life.  Even with the many disappointments, there has never been a time when I ever contemplated taking my own life or harming myself in any way.  So when I realized that Jason, my boyfriend of 2 years now, was serious about his pain it came as a shock.  How could things be so bad that a person want to kill himself?  Or put so many substances in his body so that he was completely numb? 

Mental illness, substance abuse, lack of support from the medical community, judgment from society at, and a family Jason had brought to the breaking point were all contributing to his loss of hope.  Although I knew something was different about Jason the minute we met, I didn’t understand just how bad it was.  It has taken the entirety of the time we have known each other for him to get the help he needs from the medical community.  Often they would take one look at Jason and treat him like a second class citizen.  Many times he was discharged from a hospital before they did anything for him.  Or Jason would discharge himself because he decided the hospital wasn’t doing enough.  A person with a thought process that wasn’t plagued by mental illness would have known that all hospitals have protocols that involve time. But unfortunately that is not the way Jason thinks. If things don’t get done in his time frame the place is no good.

Then, because Jason is also highly intelligent, he would just self medicate.  Because after all, isn’t that what the internet is good for now?  Giving people access to all the information they need to do things the wrong way.  And he did many times.  So wrong that occasionally I am surprised he is still alive.

His family gave up on him having what most people consider a normal life a long time ago.  The only person in Jason’s immediate family speaking to him still is his mother.  Unfortunately, they do not have the easiest time of it due to Jason and his father’s hatred of one another.  Given the fact that his mother and father are married and living under the same roof it is hard for Jason and his mother to maintain a relationship. 

At this point I am his sole source of emotional support.  Which also was pressure that no new romance needed or needs since I feel like I will be meeting Jason again for the first time.  He has finally found the correct hospital to help him stay clean and get a diagnosis.  Now the next step is treatment.  Jason is clear headed and looking forward.  This is a person I have never met.  It will be something for us to do and enjoy… together!  Although these last 2 years have not been easy, I have never been more proud of somebody else or happy that I stuck it out.  Can’t wait to see how things go.

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