My Journey is Turning into a Nightmare
I got services originally after being kidnapped and held hostage. At the hospital I made marvelous progress. I had 3 different dx when i first started. with DBT and CBT along with the most excellent Doctors I not only began to recover I flourished. The state mental health system had a training program which I took full advantage of. Things hummed along well and I dispensed with 2 of my disorders. they became so manageable that I no longer showed symptoms. The things that made my life NOT worth living evaporated.
Then I moved and came into contact with the most inept group of people I have ever met. my progress has been annihilated with the basic uncaring, inadequate, contentious people that I have seen in a mental health office. My HIPAA rights were violated, my medication was stopped because the m.a. or p.a. does not know enough how to prescribe it for my health conditions,yet has NOT sent me to someone who CAN, recent regulations at the state level removed me from most of my services , and now after filing a grievance last year in august i have still not had any notable difference in my level of care.
I am quite able to advocate for myself when my PTSD complex is in check. The clinic sent me to another clinic where the DES lady suggested I lie to get state aid to improve my services. WHAT??? If caught she gets retrained and I get banned for life. Is this an attempt to get rid of high functioning SMI clients? I know another client who advocated for herself and the state with the help of an employee at PIR , who used her knowledge and position, had this person locked up and recommended ECT. Now she can barely remember her name. Yet remains without services because she is difficult at times.
Who is there for us the mentally ill when we need protected against the very organizations that are supposed to help us?
As we continue to fight for our rights it is only natural that without help we slowly digress. The agency you complain about wont help you. the ombudsman, would not help. She felt it was a conflict of interest because I filed a grievance. Is that not her job? The silver lining here, if there is one, is that I am learning many different avenues to find help. The most distressing aspect is how very long it has been that I have had a caring and responsive team that I could rely on to help me help myself stay safe.
If I could I would give up 2 years of my life to STOP thinking or feeling suicidal. it is the most awful feeling in the world to know that you will be victimized if you ask for help.
Siski aki