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Erase the Stigma!
I have had panic attacks since 1973 and also have depression; in 1982 I finally found treatment that worked for me–and have told other sufferers about my experience, hoping to remove the stigma for all and get treatment for those who suffer. My family (both paternal and maternal genetics) has three documented generations of panic disorder, depression and related anxiety disorders afflicting ten individuals. As a child I saw my father help several of his friends get help for their mental health issues. I did not realize that he suffered from panic attacks and understood their pain very well; they were all men of the “Greatest Generation” and mental health was not discussed except in desperate private conversation. I did not know that I would experience the terror of panic disorder myself as a young mother of three preschoolers. When my diagnosis was made at the at a anxiety disorders clinic, the pre admission questionnaire asked about other family members who had similar symptoms….the many phone calls to relatives unearthed the mental health issues among us. Since then, I vowed to end the silence and help others when I can. Sadly, this past week, one of my family has committed suicide because of mental health issues. My hope is that we will, in his memory, get more help for those who need help.
Abolishing the Stigma of Mental Illness
I come from a family of people who have struggled with mental illness. I remember my diagnosis of depression like it was yesterday. Next came my son s diagnosis of OCD . Then my daughter battled self injury, depression and panic attacks combined with social anxiety. And my mom has had some form of mental illness all her life, which to this day (she’s now in her 80s) has gone untreated.
As far as my kids and myself, we are and always have been very open about our illnesses. Having come from a family that stigmatized mental illness to the point that people suffered needlessly, I am determined to fight that stigma by sharing my stories with others.
I am 59 years old and have been mentally ill ever since I can remember. 2 suicides in my immediate family made my mental state worse. My diagnosis include bi-polar, borderline personality disorder, depression and an eating disorder. My major difficulty is the stigma associated with my illness. I was laughed at by security at the er. They won’t fund a mental care facility but they will fund millions for drug abuse. When will people accept mental illness as a fact of society? I feel hopeless.
Stigma Free/Not Really Stigma Free
My family has a history of mental illness and my daughter suffers from it also which is hard enough to face in its self.Then to have adults who are suppose to be touting the stigma free society pick on and bully her for it is disgusting.She tried to work only to have these adults make her life a living hell by comments about our family and how we are all white trash and no good drug addicts and drunks. I cannot begin to tell you the damage this has caused to both of us. Mentally,physically and emotionally.Never mind the financial damage as we both had to leave our jobs due to the harrassment and intimidation caused by these people. These people are working in the education field yet they are allowed to pick on people with emotional and mental problems. Meanwhile they display their stigma free signs which they hide behind and act like they really understand and care.
The Stigma
The following Bible passage spoke volumes to me about the stigma and where it is most likely to come from’
If it were an enemy making fun of me,
I could endure it;
if it were an opponent boasting over me,
I could hide myself from him.
But it is you, my companion,
my colleague and close friend.
Psalms 55.
Challenging Stigma
Daddy,
My heart aches to much to forgive,
My eyes to swollen to forget,
It’s been years,
Seems like yesterday,
The pain so fresh,
The tears so near,
I can forgive but I will never forget.
Stigma
Hi, I have both bipolar and depression. I disclosed my condition to three primary care doctors’ and got a certified letter telling me they will not treat me because of my condition, which is controlled. I have a new doctor who only knows I have depression and I will not disclose the bipolar part, he cannot tell anyway. I would lose another doctor. Why do these doctors think people with some kind of mental illness will be a problem?
Fighting Stance
I have been battling depression and anxiety for over 13 years. One of the most scary things about having a double mental illness is battle and the stigma that comes with trying to get help and get on the right meds. My parents don’t understand that sleepiness and sadness are symptoms of depression. They also do not understand that most meds cause sleepiness and there is no such thing as antidepressant meds that can fully keep you awake. One of the most frightening lessons I have learned is that to get state medicaid, you have to wait almost two months to receive insurance. Otherwise, the cost of getting help will cost you at least $500 out of pocket for evaluations and medication.
Never Give Up Hope
The reason I share this is to shine light on a dark subject so others will know there is always hope and hopefully to help end the stigma of mental illness. By overcoming the stigma, people will reach out and get the help and recovery that is so desperately needed. There is no shame in having an illness.
Devastated. Hopeless. Those are two words that describe the emotions our family felt at hearing our son having a serious mental illness. My family was tragically blind-sided and affected by the mental illness of our adult son a few years ago. Mental illness might as well be an equal opportunity employer for it is no respecter of persons. Our son had a run of the mill average home life. He was raised in a happy and healthy two parent home with Christian values. Growing up our son had access to extracurricular activities: Little League ball, football, high school soccer, hunting, horses, friends, church activities and camps, etc. We were the typical American family.
As moms, I believe God gifts us with a sixth sense for our children. I always knew something wasn’t “quite right”. I couldn’t put my finger on it. So as any mom, I dismissed those feelings and moved on. As a child, my son was a highly anxious little boy who was a “lover not a fighter” for he was always concerned about others. That quickly changed as a teen. He gradually became the son who was irrational, rage-filled, and virtually impossible to be around. No one including his sister could bear to be around him for it was like walking on eggshells in our home. Sadly, there was no peace. I tried testing at a regional mental health coop, private counseling, a three week wilderness camp in the mountains of North Carolina, church camps, private school, and anything and everything we could think of to put him on the right track. He was never settled and never happy. So much went on over those years, I will have to save it all for a book when I retire.
Things started coming to a head for when he was 21 for he had a psychotic break. We quickly found out that getting treatment for the mentally ill is not that easy even with insurance. Without a strong and persistent family support system, many sufferers end up homeless (60% of homeless are estimated to have a mental illness) or end up in the judicial system. At the age of 23, it took a suicide attempt before a hospital would finally admit him. After three hospitalizations, multiple pharmaceutical trials, ECT treatments, countless therapy sessions with a great psychiatry team, a strong family support system, and unending prayers, our son is finally in recovery and we have regained a son we thought we would never see again.
He, much like others with a life-long illness, will always have to stay on top of his illness. He has to avoid stressful situations, stay on his meds, maintain a relationship with his medical team, and continue to have a strong family support system. He is a survivor and he is my hero.
It is nothing he did or we did to cause his illness. Unfortunately, he was genetically predisposed to this illness and drew the short end of the stick. His brain chemistry was not functioning properly. Sadly, it was much like my late dad who had too little dopamine and developed Parkinson’s; whereas, my son has too much dopamine and developed schizo-affective disorder.
God has allowed us to travel this journey to remind others and their families battling mental illnesses to never give up. There is always hope.
If you need help or know someone who needs help, contact NAMI.ORG. They can assist you or your loved one in finding the path back to mental wellness.
-Karen
My Second Hospital Stay
And I knew I wasn’t right
So I planned on going that Friday night
And I knew I wasn’t okay
Making it the perfect place for me to stay
See, for most, a mental hospital isn’t a choice
It’s one of those things where you are left without a voice
Brought there suddenly against your will
Then before you know it, you are given a bunch of random pills
But for me, it was where I was supposed to be